The Preeclampsia Registry brings together preeclampsia patients, family members, and researchers to find answers to better prevent, treat, and one day, cure preeclampsia.
It's easy to participate from the comfort of your home!
The information you provide will only be used by approved preeclampsia researchers who go through a rigorous vetting process. We will never share any information that can identify you, such as your name, your date of birth, or contact information. See our Privacy Policy and our Frequently Asked Questions page for more details.
About the Preeclampsia Registry
The Preeclampsia Registry is steadfast in our resolve to reach underrepresented audiences and ensure that our Registry reflects the population of women that experience preeclampsia.
The people who volunteer for research studies are vital in preventing, detecting, and treating diseases like preeclampsia. A diverse research participation group ensures we understand how a particular treatment, prevention, or condition affects different kinds of people and nobody is left behind as advances are made.
Learn more about how everyone can play a role to find a cause and a cure:
The registry is a "living database" which means that it continues to grow and evolve as more patients participate and new research studies are launched. By returning to the Registry once a year to provide a health update, you are helping researchers to better understand the impact of preeclampsia several years after pregnancy. Here's a few ways you can jump in now!
Researchers, please contact our Research Manager if you would like the Preeclampsia Foundation to help you recruit participants for a research study or focus group, or have any questions about the Preeclampsia Registry.
Your story is needed to improve outcomes for moms like you. Add your voice to critical preeclampsia research to ensure that every story is heard.
Frequently asked questions about the Preeclampsia Registry, a patient-driven registry and biobank.
The Preeclampsia Foundation offers research funding, study recruitment, and other patient engagement services to researchers.
We provide research grant funding to advance progress towards detection, prevention, or treatment of preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy.
By Amanda Yang, MS Evidence-based healthcare comes from trustworthy research. Research is designed carefully, so that it can be repeated and tested by other scientists. Wrong information or bad data...
By Sig-Linda Jacobsen, MD Neurological symptoms are not uncommon in those who have preeclampsia. The most common symptom is severe headache. Some patients may also experience eclampsia, or seizu...
Summary by Jennifer Mitchell, MPH, PhD Preeclampsia is a serious condition that can happen during pregnancy and affects 2-8% of pregnancies around the world. It can cause health problems for both the...
By Julie Reynolds, MD and Laney Poye As the Foundation often shares, research shows that women with a history of preeclampsia are two to four times more likely to develop cardiovascular disease (CVD)...
While the Preeclampsia Foundation has been championing patient advocacy and representation for all families affected by hypertension in pregnancy throughout our 25 year history, we recognized the uniq...