PARTICIPATE IN RESEARCH
Move preeclampsia research forward for other women like you
Patients like you are central to moving preeclampsia research forward.
Although we now understand more about what causes preeclampsia, there are still so many unanswered questions that your experience can help us understand:
All of these questions and more are being studied by researchers around the world and right here, thanks in no small part to the Preeclampsia Foundation community and our continued drive to fund and support research on preeclampsia, HELLP syndrome, and related hypertensive disorders of pregnancy.
As a patient, the choice to participate in any research study is up to you. Here’s how YOU can get involved.
The Preeclampsia Registry is a secure research database that brings your pregnancy experience(s), medical information and even your DNA, if you wish, together with leading researchers to make preeclampsia a disease of the past.
As a participant, you will join thousands of other women and families in supporting several research studies to accelerate the discoveries of the causes of preeclampsia and better options for prevention, diagnosis, and treatment.
In addition, ClinicalTrials.gov is a database of most federally and privately supported clinical trials conducted in the United States and around the world. This is a valuable resource to search for clinical trials in your area and to learn more about preeclampsia studies.
Patients are the benefactors of medical research and in the past,were often viewed as passive subjects to further new treatments and understandings of medicine. Today we have seen a shift thanks in part to advocacy organizations like ours, to recognize patients as an "n-value" and more to provide a unique, personal experience to research.
Your experiences help researchers at every stage of the research process: from study design, to recruitment, to driving participation, and even sharing results.
The Preeclampsia Foundation is regularly invited to provide your patient perspective as members of our community. For more information about patients as research partners and other ways to participate in research, please contact our Research Manager.
It is our collective voice that reduces isolation for others, raises awareness and improves healthcare practices. Let's raise up our voices so more women know about preeclampsia and HELLP syndrome and less women have adverse outcomes!
Answers to our most frequently asked questions about the registry
The Preeclampsia Foundation offers research funding, study recruitment, and other patient engagement services to researchers.
According to the World Health Organization, preeclampsia is one of the least funded areas of research, especially when considered against Disability Adjusted Life Years (DALYs). The Preeclampsia Found...
This grant program drives research to eliminate the delivery of pre-term babies as an intervention for severe preeclampsia, HELLP syndrome, and related hypertensive disorders of pregnancy. Named for t...
Question: Progesterone supplementation - first trimester and beyond - can it help the vascular constriction by keeping the smooth muscle relaxed (17HP shots), and is it associated with early supplemen...
The Preeclampsia Foundation is seeking Letters of Intent for the Peter Joseph Pappas Research Grants funding program, designed to accelerate preeclampsia research. The ultimate goal of this gran...
Promising New Test May Help to Rule-Out Suspected Preeclampsia in At-Risk Pregnant Women To diagnose preeclampsia, healthcare providers rely on measurable signs: a woman’s blood pressure, the...
Planned delivery or expectant management in preeclampsia: an individual participant data meta-analysis Delivery of the baby and the placenta is still the only definitive management for preeclampsia...
Cardiovascular Risk Factors Mediate the Long-Term Maternal Risk Associated With Hypertensive Disorders of Pregnancy Experiencing a hypertensive disorder of pregnancy increases risk for cardiovascul...