PARTICIPATE IN RESEARCH
Move preeclampsia research forward for other women like you
Last Updated on May 31, 2023
is a leading cause of
maternal mortality
and prematurity
Your Voice, Your Experience,
Your Legacy Can Help Save Lives
Why participate in research?
Patients like you are central to moving preeclampsia research forward.
Although we now understand more about what causes preeclampsia, there are still so many unanswered questions that your experience can help us understand:
- Why does preeclampsia happen in some pregnancies and not others?
- Why does preeclampsia happen to some women who have no risk factors?
- Why is preeclampsia more severe in some patients?
- How does preeclampsia affect women beyond their pregnancy experiences, including their long-term physical and mental well-being?
All of these questions and more are being studied by researchers around the world and right here, thanks in no small part to the Preeclampsia Foundation community and our continued drive to fund and support research on preeclampsia, HELLP syndrome, and related hypertensive disorders of pregnancy.
As a patient, the choice to participate in any research study is up to you. Here’s how YOU can get involved.
Join The Preeclampsia Registry
The Preeclampsia Registry is a secure research database that brings your pregnancy experience(s), medical information and even your DNA, if you wish, together with leading researchers to make preeclampsia a disease of the past.
As a participant, you will join thousands of other women and families in supporting several research studies to accelerate the discoveries of the causes of preeclampsia and better options for prevention, diagnosis, and treatment.
In addition, ClinicalTrials.gov is a database of most federally and privately supported clinical trials conducted in the United States and around the world. This is a valuable resource to search for clinical trials in your area and to learn more about preeclampsia studies.
Patients As Research Partners
Patients are the benefactors of medical research and in the past,were often viewed as passive subjects to further new treatments and understandings of medicine. Today we have seen a shift thanks in part to advocacy organizations like ours, to recognize patients as more than "just an n-value" to involve patients in the design, implementation, and analysis of research studies.
Your experiences help researchers at every stage of the research process: from study design, to recruitment, to driving participation, and even sharing results.
The Preeclampsia Foundation is regularly invited to provide your patient perspective as members of our community. For more information about patients as research partners and other ways to participate in research, please contact our Research Manager.
It is our collective voice that reduces isolation for others, raises awareness and improves healthcare practices. Let's raise up our voices so more women know about preeclampsia and HELLP syndrome and less women have adverse outcomes!
Related Articles
Your story is needed to improve outcomes for moms like you. Add your voice to critical preeclampsia research to ensure that every story is heard.
Frequently asked questions about the Preeclampsia Registry, a patient-driven registry and biobank.
The Preeclampsia Foundation offers research funding, study recruitment, and other patient engagement services to researchers.
We provide research grant funding to advance progress towards detection, prevention, or treatment of preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy.
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