PARTICIPATE IN RESEARCH
Move preeclampsia research forward for other women like you
Patients like you are central to moving preeclampsia research forward.
Although we now understand more about what causes preeclampsia, there are still so many unanswered questions that your experience can help us understand:
All of these questions and more are being studied by researchers around the world and right here, thanks in no small part to the Preeclampsia Foundation community and our continued drive to fund and support research on preeclampsia, HELLP syndrome, and related hypertensive disorders of pregnancy.
As a patient, the choice to participate in any research study is up to you. Here’s how YOU can get involved.
The Preeclampsia Registry is a secure research database that brings your pregnancy experience(s), medical information and even your DNA, if you wish, together with leading researchers to make preeclampsia a disease of the past.
As a participant, you will join thousands of other women and families in supporting several research studies to accelerate the discoveries of the causes of preeclampsia and better options for prevention, diagnosis, and treatment.
In addition, ClinicalTrials.gov is a database of most federally and privately supported clinical trials conducted in the United States and around the world. This is a valuable resource to search for clinical trials in your area and to learn more about preeclampsia studies.
Patients are the benefactors of medical research and in the past,were often viewed as passive subjects to further new treatments and understandings of medicine. Today we have seen a shift thanks in part to advocacy organizations like ours, to recognize patients as more than "just an n-value" to involve patients in the design, implementation, and analysis of research studies.
Your experiences help researchers at every stage of the research process: from study design, to recruitment, to driving participation, and even sharing results.
The Preeclampsia Foundation is regularly invited to provide your patient perspective as members of our community. For more information about patients as research partners and other ways to participate in research, please contact our Research Manager.
It is our collective voice that reduces isolation for others, raises awareness and improves healthcare practices. Let's raise up our voices so more women know about preeclampsia and HELLP syndrome and less women have adverse outcomes!
Your story is needed to improve outcomes for moms like you. Add your voice to critical preeclampsia research to ensure that every story is heard.
Frequently asked questions about the Preeclampsia Registry, a patient-driven registry and biobank.
The Preeclampsia Foundation offers research funding, study recruitment, and other patient engagement services to researchers.
We provide research grant funding to advance progress towards detection, prevention, or treatment of preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy.
Echocardiography, commonly referred to as cardiac ultrasound or an “echo”, generates visual images of the heart known as echocardiograms. This imaging technique is especially informative d...
There is an increased cardiovascular risk after a pregnant woman has preeclampsia. Previous research found that there are signs of early cardiovascular aging when a woman is six months postpartum...
The accuracy of medical history is critical for the care of any patient. Preeclampsia increases the risk of complications in future pregnancies and is also associated with an increased risk of cardiov...
The authors of this paper note that an increasing number of people are being readmitted to the hospital within six weeks of discharge home after delivery and that many of these persons had a hypertens...
This study aimed to examine the performance of two algorithms for diagnosis of hypertensive disorders of pregnancy (HDP) with medical record data from a large cohort of pregnant women. In th...