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For Researchers

Last Updated on July 27, 2021


Researchers

At the end of the day, research is the only way we will truly end preeclampsia's impact on patients and their families. Our goal is to cure preeclampsia by developing a scientific gap analysis that will lead to discoveries of a cause and a cure and to advocate for increased funding.

Thank you for joining us in the fight to ensure no moms' or babies' lives are threatened due to hypertensive disorders of pregnancy.

 
THE PREECLAMPSIA REGISTRY

Access Patient-Driven Data

The Preeclampsia Registry is a valuable resource to turn to when posing new questions, testing new hypotheses, and building study cohorts. The Registry's highly motivated participants self-report an extensive health, pregnancy, and family history, while also providing longitudinal data with yearly health updates. Some participants have even provided medical records and DNA samples, from which whole exome sequencing can be made available. Participants may also be approached to respond to new questions when needed.

The information collected is aligned with standards and definitions used in most current research efforts, making the data "user-friendly" to the greatest number of researchers.

Once approved, you will be able to access and analyze de-identified data, search for a study cohort, or use our study recruitment services. The trust patients place in us is uncompromised, therefore, research studies must be IRB-approved and evaluated by our internal review board to ensure patient safety and relevance to our mission.

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RESEARCH FUNDING

Funding Drives Research

According to the World Health Organization, preeclampsia is one of the least funded areas of research, especially when considered against Disability Adjusted Life Years (DALYs). The Preeclampsia Foundation research funding programs aim to advance the knowledge base contributing to pathophysiology, diagnosis or treatment of preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy, while capturing the hearts and minds of young investigators so they commit their intellectual pursuits and careers to the study of these diseases.

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RESEARCH ROUNDUP

Making Research Accessible to Patients

The Research Roundup team consists of diverse researchers who scour the peer-reviewed journals each quarter to highlight the most important, cutting-edge studies in the field of preeclampsia. The results of these studies are then summarized in plain language for our patient audiences and distributed via our quarterly research edition of the Expectations newsletter. We cover basic, molecular, clinical and population sciences, and a wide range of topics such as new findings in preeclampsia diagnoses, treatment, prevention, long-term effects, risk factors and etiology of preeclampsia.

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STUDY RECRUITMENT SERVICES

Bringing the "N-Value" and more

Patients are the benefactors of medical research and in the past, were often see as passive objects to further new treatments or understandings of medicine through research science. We know that recruitment is one of the most difficult, costly factors in research. Our affected patient community is a great place to start that recruitment and recognize that patients can go beyond an "n-value" to provide a unique and personal experience to every part of the research process, including participation. We are happy to connect researchers with patients to support every part of the process from design, participation, and communication of their studies.

CONTACT US
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