The Preeclampsia Patient Journey
Learn MoreLast Updated on May 10, 2022
The Preeclampsia Patient Journey
Over 800 preeclampsia survivors shared their journey from diagnosis to treatment and beyond in a recent Preeclampsia Registry study published in BMJ Open. The studydescribes the Patient Journey of these women, as it relates to awareness, communication, and involvement with decision making during experiences with preeclampsia, a potentially life-threatening hypertensive disorder of pregnancy.
A number of common patient experiences and themes emerged from the study: the feeling of not knowing that a common pregnancy symptoms was actually a warning sign; feelings of failure and isolation following delivery; shock and dismay that preeclampsia can put you at long-term risk for high blood pressure and heart disease.
The interactive map above highlights seven of these key patient moments along the Patient Journey of preeclampsia. Click on each illustration and follow What To Know to unlock resources (articles, videos, real life stories and more). A full poster of these moments is also viewable below.
View the press release about this study here and the full study here.
About The Illustrator
Joy Murphy of Harrisburg, PA, had her own personal experience with hypertension and a complicated pregnancy resulting in an emergency C-section. Having Joy illustrate the key findings of this important study "was an honor" from someone whose real life experience so closely reflected those of the 833 survivors who participated in this study.
Join the Foundation and our partners on these educational events throughout the month!
Related Articles
A visual approach to understand preeclampsia patient experiences from the Society for Maternal-Fetal Medicine & Preeclampsia Foundation
Recently, I came across a social media post calling attention to the global maternal health crisis from a Black woman’s perspective. Someone responded to the post asking, “What’s rac...
August 22, 2023 – Melbourne, FL –– Preeclampsia survivors and their supporters will hit the pavement with a purpose on Saturday, August 26, as part of the fourth annual Promise Walk...
As an advocate who served on the planning committee for the Foundation’s Chicago Promise Walk and 5K Run for numerous years and currently serves on the Patient Advisory Council, Jasmine Mago is...
When Samantha Carlin Willis attended her first Ob/Gyn appointment, she was definitely an empowered patient when it came to preeclampsia awareness. Her identical twin sister, Ilana Carlin Dimbleby, had...
As a preeclampsia survivor in our PF community, you are probably well-aware that you have a higher risk for various forms of heart disease than our “normal” pregnancy peers. As one survivo...