I was 23 weeks pregnant, and my husband, Andrew, was in England on family
business when I started to feel wrong. The first night he was gone I had
horrible pain in my right side and was unable to lie down. I contacted my
doctor and he said it sounded like I was having gall-bladder problems and
wanted me to go to the hospital to be checked out.
Luckily, my neighbor was
home and she drove me to the emergency room. They checked my gall bladder
and to them it seemed inflamed. The doctors decided to keep me for
observation and pain relief. A nurse from labor and delivery came down to
check my baby's heartbeat and it was beating strong. I didn't think anything
of it as I have never been ill or even in the hospital ever in my life. I
assured my husband that everything was okay and that my mother was on her
way to be with me. I figured I'd be home the next day. My mother arrived the
night before and was allowed to stay with me in my room.
That afternoon I had
gotten up to use the washroom and I noticed I was spotting. This concerned me
as I hadn't spotted at all in 23 weeks. I had my mother go down the hallway
to get a nurse. As I went to get back into bed, my water broke. It was at
this point that my blood pressure rose to 160/110 and the doctors couldn't
find a fetal heartbeat. I had ++ protein in my urine. The gall-bladder pain
was actually my swollen liver. I had preeclampsia. The doctors wheeled me
into ultrasound to confirm the worst. Our baby had died.
My mother was able
to contact my husband in London and he was put on the next plane back. I was
given magnesium sulfate and they waited as long as they could to induce
labor. My husband made it back the next day to find me in labor. I was
progressing slowly and was on morphine for pain relief. I couldn't see
straight and had a blood pressure of 154/98. I had a low platelet count and
was anemic so my doctors concluded that in addition to preeclampsia, I had
HELLP Syndrome.
Ten hours later, our son, Elliot, was stillborn. He weighed 1
pound, 1 ounce and was 11 1/2 inches long. He had my nose and my husband's
cheekbones. He was beautiful. Three days later I came home and my husband
and I started the grieving process.
The night after I was discharged from the
hospital I awoke in the middle of the night with chest pains and a strong
cramp in my right calf. I was rushed back to the emergency room and it was
discovered that I had developed a DVT and a Pulmonary Embolism. I was
re-admitted for another 6 days of blood thinners and pain relief. It has been
4 months since we lost Elliot and we have discovered that I have
Antiphospholipid Antibody Syndrome. The exam conducted on Elliot's placenta
showed that it had massive blood clots that cut off the oxygen and blood
supply to him.
In addition to miscarriage or stillbirth, this disease can
cause early Preeclampsia, HELLP Syndrome and placental clotting. During my
next pregnancy I will have to take baby aspirin and twice daily Heparin
injections and have my blood pressure carefully monitored. My husband and I
are looking forward to trying again this summer.
April 20, 2002 - A Recent Update from Karin
The past year and a half has been sad, scary and very wonderful. I found
out shortly after submitting my story that in addition to Antiphospholipid and
Anticariolipin antibodies I also have Factor V Leiden and Factor II
Prothrombin.
Basically, I am a "super-clotter". Of course this concerned me because I
wanted to try again for another baby, but at the same time I didn't want
to lose another one. I spent six months after losing Elliot doing my homework
regarding my health condition and speaking with doctors regarding my chances
at a successful pregnancy. In addition to all of this I was still very much
grieving the loss of Elliot. I will forever miss that little boy.
My wonderful doctors gave me and my husband permission to start trying
again last April and after 1 month of "trying" I fell pregnant. I was
immediately put onto Lovenox (low molecular weight heparin injections) and
baby aspirin as well as prenatals.
Emotionally I was a wreck but physically the pregnancy was very normal.
(As normal as a high-risk pregnancy can be I suppose.) I had monthly level II
ultrasounds and once I hit 30 weeks I had weekly non-stress tests.
I hit 35 weeks and had a "funky" (as my OB called it..) non-stress test
and they decided to look further and found that the baby's amniotic fluid levels
were low and that her (yes, HER!) abdomen had quit growing at about 33 weeks.
They decided not to risk anything so I was induced the evening of December
7th, 2001 and Amelia Jane Adair Smith arrived at 10:41 a.m. on 12/8/01. She
was 3 lbs. 12 oz. and 16 1/2 inches long. Teensy but feisty! She spent 24
hours in the NICU at Loyola University Medical Center in Chicago and then was in
the special care nursery for 7 days. She was mildly jaundiced and needed to
put on a few ounces before going home.
I had no signs of Preeclampsia or HELLP - but if things went further there
is no saying what could have happened. I am so thankful for the wonderful care
I received from my doctors at Loyola. I will forever miss Elliot but I know
that my little 4 (almost 5!) month old carries his spirit with her.
Thanks to the Preeclampsia foundation for supporting me early on in my
darkest days after losing little Elliot. I wish there wasn't a need for such an
organization - but I truly admire the work being done.
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