Test for HELLP?

Have you suffered from HELLP syndrome or had a pregnancy complicated by an underlying disorder? Discuss your concerns here
User avatar
l412angel
Registered User
Posts: 1746
Joined: Thu Mar 22, 638632 12:03 am
Location: Illinois
Contact:

Re : Test for HELLP?

Postby l412angel » Thu Jun 13, 638926 7:10 pm

Ok nother ? ha! What is ASP? Like signs symptoms?

missingjasper
Registered User
Posts: 34
Joined: Sat Sep 06, 638606 3:49 pm

Re : Test for HELLP?

Postby missingjasper » Thu Jun 13, 638926 1:37 pm

I was just coming here to ask the same question. It would be so awesome if there is a test to check for genetic factors for HELLP. I will have to ask to get tested for Antiphospholipid syndrome because I can't find it it all my blood work I had done.

User avatar
caryn
Forum Moderator
Posts: 10203
Joined: Thu Feb 16, 637032 6:26 pm

Re : Test for HELLP?

Postby caryn » Wed Jun 12, 638926 5:25 pm

Antiphospholipid syndrome.

IIRC the risk factors for HELLP are now thought to be roughly the same as for PE, but with a higher incidence in white women over 30. That's been changing, though.

User avatar
l412angel
Registered User
Posts: 1746
Joined: Thu Mar 22, 638632 12:03 am
Location: Illinois
Contact:

Re : Test for HELLP?

Postby l412angel » Mon Jun 03, 638926 6:09 pm

What exactlly are the conditions pegged for conditions of Hellp? Is that the standard Lupus, clotting disorders. What is APS?

User avatar
l412angel
Registered User
Posts: 1746
Joined: Thu Mar 22, 638632 12:03 am
Location: Illinois
Contact:

Re : Test for HELLP?

Postby l412angel » Mon Jun 03, 638926 6:07 pm

I sent the women over a email that said she and her husband are having this testing done. Hopefully I will come back with some news. I did see a genetic doc and they didn't say anything about any tests one as an indicator of PE or HELLP but you never know and I know we will all do whatever blood test is out there !:) Cant hurt!

User avatar
jean
Registered User
Posts: 675
Joined: Sun Jan 16, 638924 11:38 am

Re : Test for HELLP?

Postby jean » Mon Jun 03, 638926 5:33 pm

Oh, that would be so wonderful.
Although knowing that you could have it would be good, it would be even better to know how to prevent it or stop it from happening!!

User avatar
caryn
Forum Moderator
Posts: 10203
Joined: Thu Feb 16, 637032 6:26 pm

Re : Test for HELLP?

Postby caryn » Mon Jun 03, 638926 5:05 pm

That's interesting -- if you hear any more, could you let us know? I suspect there are some conditions that are pegged to higher rates of HELLP which a bloodtest could pick up, like APS, but I'm completely unfamiliar with genetic testing, in the sense that I haven't seen it in PubMed or the industry news.

User avatar
l412angel
Registered User
Posts: 1746
Joined: Thu Mar 22, 638632 12:03 am
Location: Illinois
Contact:

Re : Test for HELLP?

Postby l412angel » Mon Jun 03, 638926 3:01 pm

Gotcha...someone just had told me that herself and her husband were going to see if they both were carriers of Hellp. And that it was a blood test that a genetic counsler said to have done.

User avatar
caryn
Forum Moderator
Posts: 10203
Joined: Thu Feb 16, 637032 6:26 pm

Re : Test for HELLP?

Postby caryn » Mon Jun 03, 638926 2:45 pm

I've not heard anything about this. The idea as I understand it at the moment is that everyone's a carrier for HELLP, with the right partner. It's not that Person A has defective genes -- but that Person A plus Person B makes a hypertensive pregnancy when Person A plus Person C and Person B plus Person D would make perfectly normal pregnancies.

(And that's only for the subset of hypertensive pregnancies that are definitively pegged to wack placentation. Some of us, like maybe chronics, could just be susceptible to the proteins when they're produced in sufficient quantity. The researchers are still working on that bit.)

User avatar
l412angel
Registered User
Posts: 1746
Joined: Thu Mar 22, 638632 12:03 am
Location: Illinois
Contact:

Test for HELLP?

Postby l412angel » Mon Jun 03, 638926 9:10 am

I heard somewhere that there is a blood test that you and your significant other can have to see who is a carrier for hellp? LCHAD? Does anyone know anything about this?


Return to “HELLP Syndrome Survivors and Underlying Disorders”

Who is online

Users browsing this forum: No registered users and 3 guests