Fear of dying from PE - Am I being too paranoid?

Are you considering having another child after preeclampsia? Trying again after preeclampsia can be an emotional challenge. You can find support with others who share your concerns here.
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Re : Fear of dying from PE - Am I being too paranoid?

Postby preemomof2 » Tue Jan 31, 638936 8:43 pm

I am terrified of another PE pregnancy. My plan last year was to TTC this coming august but since i havent made the preconsult appointments with "specialists" we are going to wait. (and by wait i mean we still arent sure if its worth me risking it again) I feel blessed that my boys are healthy but I cant imagine, I dont want to imagine the pain some of you ladies feel having lost one of your precious babies.

Even after hearing the statistics of maternal death...I am still terrified.

Everytime I visit this site I cry because of how lucky i was, and how aweful it is that some of you werent as lucky.

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Re : Fear of dying from PE - Am I being too paranoid?

Postby sam10 » Fri Dec 16, 638935 5:59 am

I am caught up in the same thought patterns. At the moment it still makes me panic too much. Unfortunately, I find it hard to find comfort in statistics.

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Re : Fear of dying from PE - Am I being too paranoid?

Postby jennashell » Thu Dec 15, 638935 9:03 pm

Maybe this will help: I was completely healthy with baby #1. At 29 weeks I felt funny and called the doctor. On the way to the hospital I started having seizure after seizure. They couldn't stop them, they put me on life support and did a c section. The baby was not breathing and neither was I. They worked and worked and we both made it! Now, 4 years later he is healthy and perfect. That was a horrible delivery, and we're still alive:)

With baby #2 I watched me like a hawk!! My bp went up at 32 weeks and I was medicated. Diagnosed with pe, and watched. Baby was deliverd via c section at 36 weeks and was perfect!

I completely understand your fear though. We are wanting to ttc again, but I am very nervous "just in case".

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Re : Fear of dying from PE - Am I being too paranoid?

Postby kbielec » Sun Sep 21, 638932 10:36 pm

Wow...I feel like you posted exactly what I was thinking. We are hoping to TTC again soon - and I am scared that I won't make it to see my baby...I almost lost my life with Annabelle and she only lived 13 days. I took some steps to "comfort" myself though in order to make my final decision...I just completed a 24 urine and my liver/kidneys are GREAT! (said my doctor) and all is good. We have scheduled our preconception appt for the 21st of this month to write up our game plan for when we get pregnant( I am a meeting planner...I like PLANS!) that way I am aware of the treatment and the tests that will be run and how often someone can see me...I do know I"ll be on a blood thinner as well as I have factor v...so you are not alone in your feelings - because I understand and have the same thoughts...

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Re : Fear of dying from PE - Am I being too paranoid?

Postby brianned5 » Wed Sep 10, 638932 5:22 pm

My fear was so wrapped up in worrying about having another baby pass away that I didn't worry about my own mortality. I guess it stems from the fact that it's surprising I survived my first pregnancy, so I feel the risk to me is minimal in any future pregnancies. After my first pregnancy I was given a 50% chance of reoccurrence, but I made it to 36 weeks PE/HELLP free. Now in addition to my beautiful angel, I have a happy healthy 8 month old, and as soon as I get my BP controlled we are trying again. It's a very hard decision to make and I totally understand your fears. Having superb doctors also make the decision easier. Good luck.

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Re : Fear of dying from PE - Am I being too paranoid?

Postby jend01 » Wed Sep 10, 638932 6:10 am

It's almost like I could have copied and pasted your post as my own, notlong ago! :) My husband and I feel the same way as I came very close to death with my first pregnacy. I will be going to have a preconception appointment with an MFM to get some test and numbers for myself and if they tell me 25% I would be estatic!!! I am very confident in my doctors and I know I will be watched super close next time. I guess we have already decided that we will try again, right now financially we can't do it though :(

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Re : Fear of dying from PE - Am I being too paranoid?

Postby sheri-ct » Mon Jun 12, 638930 7:45 am

Your fears are very normal. I had the same fear, but not so much because of preeclampsia b/c I knew I would be watched much closer this time and I was more educated on the topic. I was worried about bleeding during delivery. I hemorrhaged during my first c-section due to full previa and was minutes from a hysterectomy. I had a lot of panic about that as we got closer to delivery, but everything went well.

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Re : Fear of dying from PE - Am I being too paranoid?

Postby kellikbock » Mon Jun 12, 638930 7:15 am

Wonderful post Caryn!!! :0) I love statistics. I especially love them when they make me feel better!

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Re : Fear of dying from PE - Am I being too paranoid?

Postby l412angel » Fri May 19, 638930 6:54 pm

Aww thanks Jennifer.

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Re : Fear of dying from PE - Am I being too paranoid?

Postby caryn » Fri May 19, 638930 1:03 pm

I know.

To be fair, that's the lifetime maternal mortality stat -- and per pregnancy the odds are at about 1:100. It's just that you get pregnant an awful lot without access to good birth control, and then you don't have access to hospitals for your ectopic pregnancy, or for your PPH, or for your preeclampsia.

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