PDA closure time - update at top

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
sj
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Re : PDA closure time - update at top

Postby sj » Wed Oct 07, 637998 6:48 am

Just wanted to wish Avery and you the very best. Hang in there for her. Like everything else we go through this too shall pass.


mama2twins
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Re : PDA closure time - update at top

Postby mama2twins » Wed Oct 07, 637998 4:07 am

Getting and actual *date* is pretty stressful, but it will come and go quickly! You are going to feel such a relief when it is all done and you don't have to think about it anymore. I will be thinking of you and Miss Avery and praying that all goes as planned!

kara
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Re : PDA closure time - update at top

Postby kara » Wed Oct 07, 637998 12:31 am

Thanks everyone! You guys are my support network, and I love all of you for it! And I do have some guilt over the whole PE/Premature birth thing. I think the cardiologist sensed this and went on to explain that PDA is actually an overwhelming "female" heart defect. It does happen to some boys, but like 80+% is in females. And he explained that it happens in full-termers too, so it's hard to say if it was from her prematurity. Although he told me a year ago that there is a higher rate in preemies. But he is sweet to try and make me feel better. I trust him, and that is important. :-)
I'll keep you all posted!
Kara

jenn
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Re : PDA closure time - update at top

Postby jenn » Tue Oct 06, 637998 9:12 am

sending my best wishes to you guys!

Nothing I can say will help with a mother's worry and unease of such an event, but know I've been through this as well and always here as a shoulder/ear.

Hugs!

annes
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Re : PDA closure time - update at top

Postby annes » Tue Oct 06, 637998 5:43 am

Well, better to have the date so you can start obsessing about the other stuff without that to worry about, but YIKES! I am sure everything will be fine! Good Luck!

mnmom
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Re : PDA closure time - update at top

Postby mnmom » Thu Jul 13, 637995 4:54 am

Kara,not sure how I missed this post before, but big hugs to you and Avery. We went through many ear surgeries with Arianna, and each was scary. Meeting with the anesthesiologist was the biggest comfort for me. The first couple sets of tubes, we had a peds anesthesiologist, which was wonderful. She also came out very nauseated, but they put some meds in her iv that helped. I also had her own blanket and bear to cuddle when she was recovering. Please keep us posted.

bellemama
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Re : PDA closure time - update at top

Postby bellemama » Thu Jul 13, 637995 2:04 am

So sorry your daughter has to have surgery!

No personal experiences with the PDA (my son's was treated in the NICU with indomethycin) but my son had hernia repair surgery, and handing him over to the nurses was the worst part, and waiting for him to come back...he also had to be completely knocked out and for the same reasons.

I spent a LOT of time talking with the anesthesiologist at the consult and then the day of the surgery. Having a good ped anesthesia specialist is important -- they understand the special challenges and have tons of experience making sure the little ones get the right mix of drugs and monitoring. Ours did a great job, DS woke up just 20 minutes after getting to recovery. Can you meet the your anesthesioligist beforehand, to discuss it further?

Will be thinking of you and Avery.

aundapenner
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Re : PDA closure time - update at top

Postby aundapenner » Sun Jul 02, 637995 10:32 am

Kara,

I'm praying for you to have strength and courage.

Henry had tubes put in his ears. I know, it's a "common" surgical procedure, but the only thing I can relate to. It was hard to hand him over. It was hard on so many levels. First, he was only 6 months old. He was the youngest there. I was so afraid of something going wrong. And second, and perhaps moreso, was the feeling all over again that I had failed as a mom because I had PIH/GD/PE. I know NOW that it's not the case, but those ****ed feelings of being a preemie parent came creeping up all over again. (And to top it off, that was about the time I had admitted to myself that I had PPD and was taking time off from work to figure out life.)

Take a deep breath. And know that you've got a HUGE support network here, holding you up, with lots of shoulders to cry on.

We'll be your strength when you feel you can't.

kara
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Re : PDA closure time - update at top

Postby kara » Wed Jun 21, 637995 9:10 am

Thanks for the support ladies! Michelle! I can't even imagine 6 surgeries! It's definitely harder now that she is older....sigh.

mama2twins
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Re : PDA closure time - update at top

Postby mama2twins » Wed Jun 21, 637995 2:00 am

Sorry that you have to deal with this Kara, but it sounds like she will be in great hands and that it is the best thing for her. I had to endure 6 surgeries between my girls and I will tell you that handing them over is so ridiculously hard and it gets harder as thet get older, but all the nurses, and the anesthiologist, and the surgeon will make you feel comfortable and safe. Before you know it, you are sitting in recover so thankful that it is over. Keep us updated!


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