HOW ARE ALL THE PREEMIES DOING

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
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hannahsmom
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Re : HOW ARE ALL THE PREEMIES DOING

Postby hannahsmom » Thu Mar 23, 2006 09:55 am

It sounds like the preemies are doing sooo well!

Hannah is doing great. She starts kindergarten in the fall [:(]
I'm kind of sad because my baby is growing up! But I'm also so proud of this milestone in her life. I told a friend of mine the other day that I could not believe she was going to kindergarten soon, and I started crying. I told my friend that in the beginning we didn't even think she would make it to kindergarten (when she was so sick in the NICU), then when we realized she would make it, we didn't think she would be going into a regular kindergarten class. Well, she has surprised us all! She is also a gymnastics star, so be watching for her a few years down the road in the summer olympics!
Hannah is in the 50th percentile for weight and 75th for height! She just had her second set of tubes put in her ears and had her adenoids taken out. She has graduated from OT and Speech. The only thing we are dealing with right now are sensory issues, but hey - that's okay! Oh, yeah - she is EXTREMELY strong-willed, which is apparently a common trait in preemies, so watch out! [:p]
We are very proud of our little blessing!

maddiekinsmom
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Re : HOW ARE ALL THE PREEMIES DOING

Postby maddiekinsmom » Wed Mar 22, 2006 09:55 pm

Madeleine, my 29 weeker is just 3 weeks shy of her 5th birthday. She weighed 1lb, 14 oz. and was in the NICU for 63 days. She had some EI services - mostly fine and gorss motor skills. She didn't walk until she was 18 months, but talked " on schedule". Her biggest hurdle (besides being born too early!) was the diagnosis of a very rare liver cancer last Feburary 2005. We are blessed that it was caught and she is now cancer free. She is a happy, very feisty and strong -willed girl - and smart as a whip with a long term memory that actually freaks us out! She's not so good at remembering what just happened, but she'll remember things she did well over a year ago with startling detail!

I really love reading these updates!

paige_va
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Re : HOW ARE ALL THE PREEMIES DOING

Postby paige_va » Thu Mar 16, 2006 08:35 pm

Meredith, my 34 weeker, is now 8 months, and seems to be hitting all the milestones right about on target for her adjusted age. Some may be slightly ahead of adjusted age, but nothing significant. After starting life at 3 lbs 8 oz, Meredith is now a healthy 17 lbs, and is almost as tall as her 12 month old cousin! Doc says that overall, she's doing wonderfully. She even finally told us that we could change Meredith's formula from the preemie stuff to regular!

whosures
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Re : HOW ARE ALL THE PREEMIES DOING

Postby whosures » Thu Mar 16, 2006 04:21 pm

Riley is doing really well. She is a former 25+5 weeker. She started crawling at 8 months adjusted, then walked 2 weeks later. She was dismissed from EI at her one year adjusted meeting. She has pretty much hit all milestones on time. She just turned 4 two weeks ago and can already write her own name and spell a handful of words. I guess there's always the worry that a delay will be spotted once she gets in school, but for now, she's fine. As far as her health, she's had two ear infections and that's it? She is kinda skinny for her age as she weighs 28 pounds or so and is about 38" tall.

wcarder
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Re : HOW ARE ALL THE PREEMIES DOING

Postby wcarder » Thu Mar 16, 2006 10:19 am

This is a great thread! It's nice to hear updates on everyone....


My 30 weeker is six and a half - first grader! Star of her soccer team, tall, and silly....struggled a lot in school this year, unexpectedly, as she has had absolutely no "preemie related problems" other than heart failure and a PDA ligation as an infant. But, I quit my job, and we've been really focusing - but making a lot of time for fun, too, and she is doing WONDERFUL. Leaps and bounds in just over a month - got her first two 100%'s on her spelling tests this week AND last, reading like a champ....it's so exciting! She has a hard time focusing on school work - on the book she is trying to read, etc. It takes a lot of patience on my part to encourage her to work at home, but you can also see how much she is benefiting from being CONFIDENT. She no longer "hates school" the way she use to.....but I have also had to step back and stop pushing her so hard, like I was...... so far, so good. Hopefully we can keep this up!

She is going to have a minor procedure this summer to release her chest tube scar from her heart surgery, but other than that she is fabulous!

mommyof1
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Re : HOW ARE ALL THE PREEMIES DOING

Postby mommyof1 » Thu Mar 16, 2006 09:57 am

Sarah I'm so glad Bethanie is doing so well. How long has she been talking like a baby. My niece is 3 years old. A little time after her brother was born 10 months ago she also started talking like a baby. Do you think it has anything to do w/ Elianna. My sister just kept on her daughter and would make her repeat everything and say it the right way. I really think it had a lot to do w/ her little brother.

bethaniesmommy
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Re : HOW ARE ALL THE PREEMIES DOING

Postby bethaniesmommy » Thu Mar 16, 2006 09:41 am

I'm a bit late getting to this but...
My preemie, Bethanie, born at 27 weeks weighing 1 pound 12 ounces, is now 5 1/2 and doing wonderful!! She is extrememly healthy, has had nothing but minor colds since starting school (I thought she would miss a ton of school since she had never been in daycare or anything around alot of kids). She is in Pre-k and has just amazed me with all that she has learned. She is reading very well! Her and her cousin (full term, 2 months older) are the best readers in her class. Other than being small still (33 pounds, but not the smallest in her class) she has no lasting affects of her being so early and small. She has also started a dance/tumbling class which she loves, but she is not very cordinated but I think she gets that from me :) The only problem we have been having with her is she wants to talk like a baby ALL the time (she can talk great but she won't, she baby talks and won't talk in complete sentances, uugghhh, but I am trying to break it, her teacher says she doesn't do it at school). Any suggestions????

Great to hear about all the preemies!!

deerhart
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Re : HOW ARE ALL THE PREEMIES DOING

Postby deerhart » Thu Mar 16, 2006 00:49 am

Jenn

I have a friend who was a micro preemie (pre-term labor though) and he had has had 0 problems (master's degree, family of his own, etc..) Its amazing what you find out about other people when something like this happens to you!

mama2twins
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Re : HOW ARE ALL THE PREEMIES DOING

Postby mama2twins » Wed Mar 15, 2006 08:58 pm

NO better place to post this than here:
We went to developmental clinic today and the girls are right on target speech/language, fine motor skills, eating, social skills, and Carolina for gross motor skills. Daniella is behind in gross motor skills since she just started "really" walking a few weeks ago....(and who is a peds PT??? ME!)
I still, to this day, cannot believe that they were so small and had such a rough NICU stay... and still are beating all the odds.
Amie Jo....pulling to stand is a 9-11 month old skill..he is only 8 months adjusted age, so just give him some more time!

amiejo
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Re : HOW ARE ALL THE PREEMIES DOING

Postby amiejo » Wed Mar 15, 2006 05:10 pm

Alyssa, my 29 weeker, is doing really well. She is 4 1/2 and caught up on almost all developmental skills around 3 years old. She had EI services until around that time.She does have a big over sensitivity to loud sounds. She is alittle clumsy and not confident in her motor skills (could be genetic). But overall, she has done extremely well.

Ty, my 31 weeker, is a champ. He is 10 months old and is caught up on all skills. I'm a little concerned that he has no interest in walking or pulling up, but mainly he is just content crawling around.

Great topic. It's nice to hear how preemies are doing. Sometimes we only hear the bad stories on tv and in magazines. I wish they gave some good news too.

Olivia - There is alot of good info on helping kids with autism disorders. I have worked with that population of special needs children for years as a behavior specialist and psychologist. It's great that you got an early diagnosis and can now begin working on his skills. Best Wishes.


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