Nathanial's sick - another UPDATE

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
timelessbeauty
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Re : Nathanial's sick - another UPDATE

Postby timelessbeauty » Fri Apr 07, 2006 03:49 pm

Will keep you in my prayers!

youtan
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Re : Nathanial's sick - another UPDATE

Postby youtan » Fri Apr 07, 2006 03:39 pm

His muscle enzymes (creatine kinase) are still elevated, 1227. There just isn't any information online on why this is elevated, besides MD. But, I don't think its high enough for that. Normal levels are around 100 and can be as high as 5,000 - 100,000 in kids with MD. So, I'm completely at a lose. They missed another lab, I can't remember what she said it was, but they will once again draw blood today. We won't know the results until Monday or Tuesday. Thanks for all your prayers.

mama2twins
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Re : Nathanial's sick - another UPDATE

Postby mama2twins » Fri Apr 07, 2006 09:55 am

Hi Tanya,
I hope that the physiatrist finds some answers for you all. The physiatrist I work with is like a walking encyclopedia. They see so many things that many pediatricians do not see when it comes to strength or muscle type issues. Keep up posted and good luck with everything.

fiona
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Re : Nathanial's sick - another UPDATE

Postby fiona » Thu Apr 06, 2006 09:40 pm

Tanya,

I only just spotted this update. I hope the next round of tests produce better results.

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julie f
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Re : Nathanial's sick - another UPDATE

Postby julie f » Thu Apr 06, 2006 08:30 pm

Tanya, keeping your little man - and you - in my prayers. When do you get the next round of results?

rachel a
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Re : Nathanial's sick - another UPDATE

Postby rachel a » Thu Apr 06, 2006 12:28 am

Prayers hon. I know how difficult this must be.

lorelei
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Re : Nathanial's sick - another UPDATE

Postby lorelei » Thu Apr 06, 2006 12:01 am

Keeping you guys in thoughts and prayers Tanya! (((HUGS)))

youtan
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Re : Nathanial's sick - another UPDATE

Postby youtan » Thu Apr 06, 2006 09:27 am

Well, we got the results back from the last round of blood tests. I was so hoping that this was a worst at thyroid problem. But, his sed rate and enzymes are still elevated (no problem with his thyroid). They want to test these levels AGAIN and he'll be sent to a physical therapist-type doc, I'm assuming to actually test his strength. Two days ago we went on a walk - and he kept up, but later he complained of stinging in his leg. Please pray that this will still turn out to be nothing.....

lucy
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Re : Nathanial's sick - another UPDATE

Postby lucy » Sun Mar 26, 2006 03:06 am

Glad your feeling more at ease, and that you guys are back together!! Good luck.

wcarder
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Re : Nathanial's sick - another UPDATE

Postby wcarder » Thu Mar 23, 2006 09:56 am

Tanya,

I don't know why I never saw this post until now...... I'm so sorry that you are having these hurdles with Nathanial...that is so scary and so stressful....but I am so glad you guys are all back together again - I truly understand how hard it is to be apart.....Let us know how Nathanial likes his new school, and what the labs show...How are you liking Ohio and your new job?


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