Nathanial's sick - another UPDATE

Are you part of the NICU club? Do you have a child who is still struggling with the effects of being born too soon from preeclampsia? Share your concerns and stories here among parents who have been there.
timelessbeauty
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Re : Nathanial's sick - another UPDATE

Postby timelessbeauty » Mon Dec 30, 637658 3:48 am

Will keep you in my prayers!

youtan
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Re : Nathanial's sick - another UPDATE

Postby youtan » Mon Dec 30, 637658 3:32 am

His muscle enzymes (creatine kinase) are still elevated, 1227. There just isn't any information online on why this is elevated, besides MD. But, I don't think its high enough for that. Normal levels are around 100 and can be as high as 5,000 - 100,000 in kids with MD. So, I'm completely at a lose. They missed another lab, I can't remember what she said it was, but they will once again draw blood today. We won't know the results until Monday or Tuesday. Thanks for all your prayers.

mama2twins
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Re : Nathanial's sick - another UPDATE

Postby mama2twins » Sun Dec 29, 637658 11:18 am

Hi Tanya,
I hope that the physiatrist finds some answers for you all. The physiatrist I work with is like a walking encyclopedia. They see so many things that many pediatricians do not see when it comes to strength or muscle type issues. Keep up posted and good luck with everything.

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Re : Nathanial's sick - another UPDATE

Postby fiona » Thu Dec 19, 637658 6:27 am

Tanya,

I only just spotted this update. I hope the next round of tests produce better results.

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julie f
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Re : Nathanial's sick - another UPDATE

Postby julie f » Thu Dec 19, 637658 3:24 am

Tanya, keeping your little man - and you - in my prayers. When do you get the next round of results?

rachel a
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Re : Nathanial's sick - another UPDATE

Postby rachel a » Wed Dec 18, 637658 5:06 am

Prayers hon. I know how difficult this must be.

lorelei
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Re : Nathanial's sick - another UPDATE

Postby lorelei » Wed Dec 18, 637658 4:22 am

Keeping you guys in thoughts and prayers Tanya! (((HUGS)))

youtan
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Re : Nathanial's sick - another UPDATE

Postby youtan » Tue Dec 17, 637658 8:45 pm

Well, we got the results back from the last round of blood tests. I was so hoping that this was a worst at thyroid problem. But, his sed rate and enzymes are still elevated (no problem with his thyroid). They want to test these levels AGAIN and he'll be sent to a physical therapist-type doc, I'm assuming to actually test his strength. Two days ago we went on a walk - and he kept up, but later he complained of stinging in his leg. Please pray that this will still turn out to be nothing.....

lucy
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Re : Nathanial's sick - another UPDATE

Postby lucy » Sun Jun 04, 637656 5:16 am

Glad your feeling more at ease, and that you guys are back together!! Good luck.

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Re : Nathanial's sick - another UPDATE

Postby wcarder » Mon May 01, 637656 6:00 am

Tanya,

I don't know why I never saw this post until now...... I'm so sorry that you are having these hurdles with Nathanial...that is so scary and so stressful....but I am so glad you guys are all back together again - I truly understand how hard it is to be apart.....Let us know how Nathanial likes his new school, and what the labs show...How are you liking Ohio and your new job?


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