Lost my baby this monday. pls help me understand!!

This section is for discussions with other women who have probably been through the same signs/symptoms that you may be experiencing. Please note, we cannot offer medical advice and encourage members to discuss their concerns with their doctors. New members, come on in and introduce yourself!
reneee
Registered User
Posts: 10
Joined: Fri Oct 28, 2016 8:03 am

Re: Lost my baby this monday. pls help me understand!!

Postby reneee » Thu Jan 05, 2017 06:35 pm

thanks Jwhampton for your reply. i will try and continue telling myself that.it is sooo hard, i miss my boy so much, it doesnt help when 50 yr old Janet Jackson just had a baby and me a 31 lost mine. i am jealous, but happy for her
*'*Enok severe PE 22+6. born too early 24.10.16. So so sorry love wasn`t enough sweetheart.***

jwhampton
Registered User
Posts: 6
Joined: Wed Apr 08, 2015 10:32 am

Re: Lost my baby this monday. pls help me understand!!

Postby jwhampton » Fri Dec 23, 2016 01:39 am

Absolutely nothing-it sounds like you have a game plan already.

I just have to point out, however, that *your* side of the placenta is closest to the baby. The ischemic part was your partner's layer, which again relates to this being an immune mediated rejection of an invasive foreign organ. The pathology report of the placenta sounds pretty much in line with what I'd expect out of a preeclamptic pregnancy.

Repeat this as often as you need to hear it: you did absolutely nothing wrong. This is not your fault. You did not cause this to happen.

Good luck!


reneee wrote:So testings for immune issues and blood disorders came out negative. My antithrombin is on the lower side, so i will take a new bloodtest in some weeks because the specialist thought its residual from the preeclampsia and pregnancy loss. Pathology showed nothing wrong with baby, everything was wrong on my side of the placenta, showing acute and chronic ischemia, bleeding and nekrosis. Diagnosis is Small placenta with widespread acute and chronic ischemia and acute atherosis

The only thing the specialist could say for certain was that i will take Aspirin in a future pregnancy and i need to lose weight. i am already working on losing some weight if that will help better circulation . we really want to try again for a baby since we are childless, but is Aspirin really all it takes, i am not convinced ? The specialist will not even take about heparin shots eventhough all the prbs were on my side of the placenta.

I have started with Metformin to help with my PCOS, my TSH t3 t4 are all ok, i feel like i shd be doing more, pls what am i missing ???

reneee
Registered User
Posts: 10
Joined: Fri Oct 28, 2016 8:03 am

Re: Lost my baby this monday. pls help me understand!!

Postby reneee » Thu Dec 22, 2016 09:28 pm

So testings for immune issues and blood disorders came out negative. My antithrombin is on the lower side, so i will take a new bloodtest in some weeks because the specialist thought its residual from the preeclampsia and pregnancy loss. Pathology showed nothing wrong with baby, everything was wrong on my side of the placenta, showing acute and chronic ischemia, bleeding and nekrosis. Diagnosis is Small placenta with widespread acute and chronic ischemia and acute atherosis

The only thing the specialist could say for certain was that i will take Aspirin in a future pregnancy and i need to lose weight. i am already working on losing some weight if that will help better circulation . we really want to try again for a baby since we are childless, but is Aspirin really all it takes, i am not convinced ? The specialist will not even take about heparin shots eventhough all the prbs were on my side of the placenta.

I have started with Metformin to help with my PCOS, my TSH t3 t4 are all ok, i feel like i shd be doing more, pls what am i missing ???
*'*Enok severe PE 22+6. born too early 24.10.16. So so sorry love wasn`t enough sweetheart.***

jwhampton12
Registered User

Re: Lost my baby this monday. pls help me understand!!

Postby jwhampton12 » Wed Nov 09, 2016 07:53 pm

reneee wrote:Thank you for sharing the studies. will definately keep you all updated after our talk with the doc who first gave me the PCOS diagnosis and what he says about me starting Metformin and our talk with MFM spesialist in desember . Good health to everyone


Metformin may help with any underlying insulin resistance, which may help overall-but any studies showing anything about implantation are studies done in petri dishes and are still jumping into the implantation process a step or two late.

Again, if you have an underlying insulin resistance (because that's something PCOS does), addressing that may be beneficial in terms of overall health.

reneee
Registered User
Posts: 10
Joined: Fri Oct 28, 2016 8:03 am

Re: Lost my baby this monday. pls help me understand!!

Postby reneee » Wed Nov 09, 2016 10:37 am

Thank you for sharing the studies. will definately keep you all updated after our talk with the doc who first gave me the PCOS diagnosis and what he says about me starting Metformin and our talk with MFM spesialist in desember . Good health to everyone
*'*Enok severe PE 22+6. born too early 24.10.16. So so sorry love wasn`t enough sweetheart.***

alviarin
Forum Moderator
Posts: 1794
Joined: Tue Apr 18, 2006 12:56 am
Location: Texas

Re: Lost my baby this monday. pls help me understand!!

Postby alviarin » Tue Nov 08, 2016 05:41 pm

Hi Renee,

I'm so sorry for your loss.

There is one small study relating to PCOS you might want to discuss with your doc: http://www.preeclampsia.org/forum/viewt ... COS#p25571 It is a small study so not definitive but metformin might be worth considering.

Weight loss may slightly reduce risk for some women: http://www.preeclampsia.org/forum/viewt ... oss#p39036

It sounds like you are being tested for some of the bigger risk factors like lupus and blood clotting disorders. Good luck, please let us know what you find out.
Hypothyroid mom to
Connor (severe pre-e at 38 weeks)
Claire (dx'd with pre-e and induction at 37 weeks)
Annabelle (chronic HTN & GD, superimposed pre-e @34 weeks, induction @37 weeks)

reneee
Registered User
Posts: 10
Joined: Fri Oct 28, 2016 8:03 am

Re: Lost my baby this monday. pls help me understand!!

Postby reneee » Wed Nov 02, 2016 03:47 pm

thank you jwhampton, i have an appointment with the doctor who first gave me that diagnosis and i will take up the PCOS- insulin resistens and thyroid issue with him. thanks for bringing that up again
*'*Enok severe PE 22+6. born too early 24.10.16. So so sorry love wasn`t enough sweetheart.***

jwhampton
Registered User
Posts: 6
Joined: Wed Apr 08, 2015 10:32 am

Re: Lost my baby this monday. pls help me understand!!

Postby jwhampton » Tue Nov 01, 2016 11:09 pm

Then what is most likely going on is that you are indeed a chronic hypertensive-that your pressures rose above your baseline before the 20 week mark is indicative of that.

If you've been diagnosed with PCOS, then PCOS itself induces a mild insulin resistance as a baseline, and pregnancy further exacerbates that. That you have PCOS also means you have an underlying disease process (that may or may not be autoimmune, I need to finish reading the latest on it first) that predisposes you to have a twitchy immune system and makes implantation more difficult. Thyroid issues and diabetes both tend to occur with PCOS-it's called comorbidity. That you've been tested for this already is promising.

As far as your weight: keep in mind that PCOS induces a mild insulin resistance as a baseline and that's in addition to the extra testosterone and its' masculinizing effects. So yes, while your weight is an additional risk factor-it is only a factor, not a cause. It is also not a factor you likely have much control over, because again-PCOS. I would strongly recommend adding at least an endocrinologist to your care team and possibly one with experience in assisted reproduction/complicated pregnancies.

I will tell you that I have friends here who attempted for ten years and finally had to resort to ART because of her PCOS; their son is three months old now. There's hope.

reneee wrote:Dear jwhampton,
pls nothing you write will strike a nerve here. i appreciate your honesty and your views and love that you bring up possibilities. My BP dropped again after i gave birth to my boy, i am currently off the BP medicines, so my hypertension was pregnancy induced, but i am not ruling out a hiden chronic hypertension here. i am going to invest in a BP machine as soon as i can and will watch it like a hawk , since i read pre e makes my risk og future cardio prbs higher. Before getting pregnant, i never had a high BP like the one i had at 12 weeks and voiced out it was high and got the "big woman" answer. it went down again at the controll a couple of days after and i didnt even think about it again until things started unfolding. Now i know better than to accept such answers from my doctor, i am much wiser and i feel more knowledgeable

I do not have insulin resistence or diabetes as at now and neither do i have thyroid issues, it was checked before every new IVF . but all these will have to be checked again before a new IVF. My obesity i think is because i love my sofa after a long day at work, love my big portions , stop excercising after getting some results and genes (African).

Yes i have PCOS no signs of insulin resistens yet, but we had IVF mainly because og Male Factor Infertility. i do understand the theories around ART and pre e now. i am learning more and more each day and hope i am well prepared next time. I know our specialist has already recommended Aspirin from week 6 in a future pregnancy , normal ultrasounds 8,12, Ultrasounds with specialist from week 18, BP at doctors with urintests and bloods as soon as pregnant and every 2 weeks. i feel like we will be going into a new pregnancy very prepared. wish i knew what i know now with my little boy and first pregnancy

reneee
Registered User
Posts: 10
Joined: Fri Oct 28, 2016 8:03 am

Re: Lost my baby this monday. pls help me understand!!

Postby reneee » Tue Nov 01, 2016 10:03 pm

Dear jwhampton,
pls nothing you write will strike a nerve here. i appreciate your honesty and your views and love that you bring up possibilities. My BP dropped again after i gave birth to my boy, i am currently off the BP medicines, so my hypertension was pregnancy induced, but i am not ruling out a hiden chronic hypertension here. i am going to invest in a BP machine as soon as i can and will watch it like a hawk , since i read pre e makes my risk og future cardio prbs higher. Before getting pregnant, i never had a high BP like the one i had at 12 weeks and voiced out it was high and got the "big woman" answer. it went down again at the controll a couple of days after and i didnt even think about it again until things started unfolding. Now i know better than to accept such answers from my doctor, i am much wiser and i feel more knowledgeable

I do not have insulin resistence or diabetes as at now and neither do i have thyroid issues, it was checked before every new IVF . but all these will have to be checked again before a new IVF. My obesity i think is because i love my sofa after a long day at work, love my big portions , stop excercising after getting some results and genes (African).

Yes i have PCOS no signs of insulin resistens yet, but we had IVF mainly because og Male Factor Infertility. i do understand the theories around ART and pre e now. i am learning more and more each day and hope i am well prepared next time. I know our specialist has already recommended Aspirin from week 6 in a future pregnancy , normal ultrasounds 8,12, Ultrasounds with specialist from week 18, BP at doctors with urintests and bloods as soon as pregnant and every 2 weeks. i feel like we will be going into a new pregnancy very prepared. wish i knew what i know now with my little boy and first pregnancy
*'*Enok severe PE 22+6. born too early 24.10.16. So so sorry love wasn`t enough sweetheart.***

jwhampton
Registered User
Posts: 6
Joined: Wed Apr 08, 2015 10:32 am

Re: Lost my baby this monday. pls help me understand!!

Postby jwhampton » Tue Nov 01, 2016 04:02 pm

Howdy! I'm so sorry to hear about your early loss, I can understand how gut-wrenching it is to try so hard and lose him entirely too soon.

I've got a couple of questions that may help to shape the answers I can point you to. I'm sorry if they're overwhelming or grate over a raw patch. Feel free to breathe and take as much time as you need answering.

You mentioned that at 12 weeks, your blood pressure was at 145/85-was that within the range of your normal or was it elevated from your normal?

If it was elevated above your normal pressure, then there's a possibility you are what's considered an "unmasked chronic hypertensive"-the invasive placenta helpfully uncovered a genetic tendency towards chronic hypertension that may ordinarily have shown up later in life.

Preeclampsia is likely coming down to an immune mediated rejection of the invasive part of the placenta. The invasive part reads as foreign because it is coded by your partner's donation and something about the negotiation process between your partner and your immune system triggers your immune system to interpret the implantation of the placenta as something not-friendly. The risks of developing preeclampsia are higher in ART (assisted reproductive therapy), and it may have something to do with the underlying reason for needing the ART. The risks are also elevated in a first pregnancy, which it sounds like this may have been.

The positive news is that you may find it easier to conceive a second time, because a pregnancy remodels uterine arteries and that remodelling hangs around for a bit; a subsequent pregnancy may be able to take advantage of that to implant better and your immune system may be agreeable a second time around.

You also mention in the heap o' testing your specialist wants to perform on you that diabetes is being suggested. I'm looking at diabetes, repeated pregnancy attempts, multiple IVF attempts, and an inability to lose weight. All of those, to me, point to an underlying health condition and I'm cheered by the idea that your specialist has ordered a pile of testing. Have you ever been diagnosed with PCOS (polycystic ovarian disease) or thyroid disease, or would you happen to know if either of those run in your family? Either or both of those diseases can present with an inability to lose weight, insulin resistance/diabetes, and trouble conceiving/maintaining a pregnancy. Investigating either of those possibilities could unify what seems to be a lot of disparate bits and answer pretty much everything at once.

While I know all of this is overwhelming, let me offer you this bit of reassurance: there is absolutely zip, zilch, zero, nada, and not a thing you did wrong to cause this. There is nothing you could have/would have/should have done, not done, done differently to cause this or to prevent it. It comes down to how well your immune system cooperates with the portion of the placenta that your partner codes for so that the placenta can tap into your blood supply/hormone supply/nutrient supply/ waste disposal system...basically all your stuff. Your immune system was being protective. It simply may have been a bit overeager in this instance. Again and again, this is not your fault.

To ultimately answer your question: we can't definitively say. We're strangers on the internet, not a specialist with your medical file in front of us. We do have the knowledge and experience, however, to point you to some possibilities that may very well make it happen. I won't say no, absolutely-but I'm also not saying yes, absolutely. It's possible, don't give up hope entirely yet.

reneee wrote:Hello lovely community,
I have just joined this forum in my search to understand. I just lost my baby this monday to serious preeclampsia and we are devastated. This baby was very much wanted and after 3 IVFs we got this single one that stuck and we were so happy. I am overweight BMI 34(107kg) whilst on IVF treatments, went up to 37(111) at my week 15 weighin had gone up 4 kg total since getting pregnant. Not chronic hypertensive as far as i know but at 12 week BP was 145/85, doctor said it was because i was a "big woman".No proteins in urin. 2 days later BP was 130/85. 18+4 scan everything was fine and we got to know we were having a boy. Week 22 was at midwifes, BP was 150/95, P++ in urin, så was sent to the hospital. Scans showed baby was about 20 weeks and not 22 weeks, reverse bloodflow on scan and he was already moving less to conserve energy and this heart and brain were already struggling. started with Labetalol but BP was just getting high and protein urin tests getting higher, baby stopped moving completely 22+4, i was induced and my baby came out this monday 22+6 and placenta manually removed because it was stuck. i read it was torn and small. The placenta had been sent for pathological tests, i will take more bloodtests in about 8 weeks IgA, LUPUS, LEIDEN and some other tests i think, and we will talk to a spesialist who will talk us through all the tests taken and the results and our chances if we decide to try again. The only thing i can controll now is my weight, so i know i will have to try my best and loose some weight as soon as i can , apart from that i am clueless, we talked about preeclampsia with my doctor and my risks but i never thought it could start so early.
we also talked about diabetes, i was more afraid of the diabetes, i felt great throughout the pregnancy and didnt have a clue. pls help me get wiser, and will i ever be a mom after so serious preeclampsia so early in a pregnancy?? what tests are they talking about??


Return to “Ask the Experienced”

Who is online

Users browsing this forum: No registered users and 6 guests