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atvlady
Advanced Member
US
856 Posts |
 Posted - 11/04/2009 : 1:27:24 PM
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We are home from my pre-concept and my female irregularity. As far as my irregularity, my OB is not going to mess with any of that wil we are TTC.
She did find some Rheumatoid levels and they were normal.
She is excited to see how this DNA study comes back. She wants me to forward her all the information they obtain from it. She <believes> that possibly in my case something may show up.
Ok this is the horrible part....I take one step forward and 50 back. She is happy we are TTC HOWEVER she did say that due to the severity of my pre-e, HELLP and PIH, she said that if I go back into HELLP, my liver could be non existant. I asked her my chances on my liver blowing out and she they are HIGH. BUT BUT BUT she is going to be doing bloodwork every week to watch my liver levels and IF they go back up and my platelets start to fall, she is going to have to deliver me regardless of how far along I am. (Oh geez ladies I am so depressed over this!) She also said that my fatty liver COULD have caused my HELLP. She said fatty liver in pregnancy is rare BUT we did find the cause for it. Last year I was 210 in April. I lost 80 pounds on the Adkins diet in 3 months. I felt good and didn't care how fast I lost it. Got down to 130 and almost into my high school clothes. Got pregnant and m/c in June. M/C in December and now this. The horrible thing is when I lost all of that weight, that caused my fatty liver. I have gained all that weight back. Gosh am I SO incredibly mad at myself! I asked her can I lose weight and have a healthy pregnancy. She says yes by all means. She suggested I do the South Beach diet ( which I have started in the past 2 weeks). She said a lot of her patients go on it and have very healthy pregnancies.
She wishes me luck and hopes I don't go to the point of no return.
Ladies, I don't know what to think. Do I risk dying and leaving my gift of a hubby behind or TTC but keep in tune to my body? She said she would see me every week from 8 weeks and u/s would be done every week as well. She says I am in the super super high risk category. I am afraid of dying. But if I don't take the chance on having another baby, it will be on my mind all my life that I didn't give it another try. So I think we are going to TTC but go to all my appts and do all my blood work and communicate to my dr and ......just do all I can to atleast save my life. I'm stuck...I don't know what to think.
She says that she is going to compile all my medial information and get wiht the team of drs there and have a solid plan on what to do and when. The blood work once a week was my suggestion. She agreed to it and said that would be the same she would do. There is 2 MFM coming to her office December 1.
I think I will be ok with all the one-step-ahead care I will get but there is still that chance......
Life isn't fair and especially when you wait all your life to find the right man to call daddy material only to have the rug pulled out from under you. My husband and I are VERY happy, a baby would complete the circle. He tells me that if it is just us, it is ok but I see how happy he was when I was pg with Darren. My husband had a VERY traumatic life event (long story) and this baby was our/his rebound to a better and new life. He said he never thought he would be a dad, but Darren made him one. I am confused. Women have babies and don't want them, people take life for granted not realizing how fragile it truely is. I am so furious that pre-e has invaded my personal space, my life this way. I have not talked to many women who had HELLP that went on to have successful pregnancies after HELLP. My dr did say she has had 5 or 6 other ladies with pre-e at 20 weeks like myself (when she worked at a referal center) but I am her first patient that has had it at 20. She said she has many others at 23,24 weeks and on. I fully trust my OB. She knows what to look for and I am not challenging her plan for I know it is the best, staying a step ahead.
Ok can someone give me some of their thoughts? Am I being selfish on TTC or do you think I am in good hands? I knwo this is a decision I can only make but you all are on the outside looking in, you all have unfortunatley wore my shoes and understand how I feel.
Thanks...it's the ramble day........... |
Delissa(37) Hubby(44)
#1 Rissa-Janelle "Darren" King born 6-6-09 10:33 p.m. passed 6-6-09 11:53 p.m. Twenty weeks one day gestational, 192 grams (6.8 ounces), 9 inches long. Severe PIH, severe Preeclampsia and severe HELLP.
Diagnosed with Hashimoto's, NAFLD, bad cholesterol, Diverticulitis, GB removal 2-10-2010, Autoimmune Hemolytic Anemia 4-5-2010. Liver is FINALLY normal after a 9 month fight due to HELLP YAY!
TTC #2 JULY 30,2010! |
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Amanda
Pregnant Again Moderator
US
2207 Posts |
Posted - 11/04/2009 : 2:10:43 PM
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Delissa -
This is such a complicated decision and like you said, only one that you and your husband can make. I'm so sorry though that you are having to make it or even deal with it - as you said sometimes life is just...well, not fun to say the least.
If it were me (and it has been) I would take some time and think through *all* the options that are available to you. You said that the MFM's would be available soon? I would also discuss this with them also - they are much more likely to be able to give you more information and have dealt with situations like this before - hopefully more than once.
Please know that I am not in any way saying that your decision, whatever it may be, is not the best one for you and your husband. I wish you the very best of luck. |
Amanda
Mom to: Samantha, Sydney & Anna Grace 33 weeks 2pds/13oz
Superimposed PE due to: Lupus, Chronic Kidney Disease, Chronic Hypertension |
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AnneS
Assistant Forum Administrator
USA
2536 Posts |
Posted - 11/04/2009 : 2:37:46 PM
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| I think it is great that you are getting all the info you can prior to getting pregnant, that is the best way to make a decision you and your dh can live with. Good Luck with South Beach, I had a lot of success on the diet that Valerie Bertinelli is a spokeswoman for. |
Anne
DH Richard
DS Parker 7/6/03(severe pe)33wks
DS Griffin 2/17/06-2/21/06, 25 wks,IUGR and Low Amniotic Fluid
DD Clover 6/25/08 35 wks, NO PE! |
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missgamecock
Senior Member
USA
6191 Posts |
Posted - 11/04/2009 : 6:26:56 PM
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| I wish I could just hug you. It sounds like you have a good team in place that is not taking any chances. Your dr will be watching for you to check for symptoms before anything bad happens. Will you get past 20 weeks? Who knows. Only you can make that decision. |
Sabrina, mom of Kirsten Scout DOB 3/27/99, 5lbs, 1oz., 36 weeks, severe PE, & Sara Grace DOB 6/28/05, 6lbs 1oz., Severe PIH, 35 weeks 5 days. #3 Peyton, lost at 13 weeks 3 days on 2/21/08
4th - Lost at 5 weeks 4/30/08.
DD #3, Caitlyn Elyse (Catie), a Rainbow Baby, DOB 1/16/09, 5lbs 7 ozs, 36 weeks, Diagnosed w/ chronic HTN, RT Uterine Artery Notching, and mild PE before delivery, severe after.
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jules2
Junior Member
UK
373 Posts |
Posted - 11/05/2009 : 04:17:10 AM
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Delissa,
I am so sorry you are faced with such a difficult decision to make. It is your decision and your husband's alone, but if you are finding it very difficult (hardly suprising), would it help to talk with another MFM?. I know you trust your MFM, and it sounds like she is really looking out for you, but given that you are considered such high risk another opinion seems reasonable. I think that is what I would do in your position, although I'm not sure whether that would really help or not. :-(
Best wishes
Jules x |
Mother to Alice, stillborn on 05/09/09 at 26+1 weeks
Missed miscarriage at 8 weeks, Nov 2009 & mc at 5 weeks Feb 2010
Pregnancy no. 4 due 12/29/10 |
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jules2
Junior Member
UK
373 Posts |
Posted - 11/05/2009 : 04:21:28 AM
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| And no, life can be so very unfair. I am so sorry you are in this awful position (HUGS) |
Mother to Alice, stillborn on 05/09/09 at 26+1 weeks
Missed miscarriage at 8 weeks, Nov 2009 & mc at 5 weeks Feb 2010
Pregnancy no. 4 due 12/29/10 |
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atvlady
Advanced Member
US
856 Posts |
Posted - 11/05/2009 : 09:37:55 AM
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| Thanks to all of you. My OB is just a OB. The MFM I am seeing is in the same building as my OB. I trust my OB over my MFM and my OB was telling us that there is 2 MFM coming to her office December 1. So I will wait until I become pregnant and go for my first office visit then I will let her tell me which one I should see. If either of them doesn't seem to be any better. then we wil have to travel 3 1/2 hours to another MFM. At this point I will do what it takes for myself, the baby and my husband. |
Delissa(37) Hubby(44)
#1 Rissa-Janelle "Darren" King born 6-6-09 10:33 p.m. passed 6-6-09 11:53 p.m. Twenty weeks one day gestational, 192 grams (6.8 ounces), 9 inches long. Severe PIH, severe Preeclampsia and severe HELLP.
Diagnosed with Hashimoto's, NAFLD, bad cholesterol, Diverticulitis, GB removal 2-10-2010, Autoimmune Hemolytic Anemia 4-5-2010. Liver is FINALLY normal after a 9 month fight due to HELLP YAY!
TTC #2 JULY 30,2010! |
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Is home from my pre-concept.....:(
