Search found 81 matches

by jjones1333
Sat Dec 20, 639902 7:27 am
Forum: HELLP Syndrome Survivors and Underlying Disorders
Topic: No underlying conditions?
Replies: 4
Views: 7706

No underlying conditions?

Does anyone not having an underlying condition even after multiple pe/hellp experiences? After my severe pree at 25 weeks with my first I was tested for Lupus, RA, protein deficiencies, Factor V, and another blood disorder I forgot. All negative. My older sister does have a protein S deficiency thou...
by jjones1333
Fri Feb 02, 639573 1:52 pm
Forum: Pregnant Again?
Topic: Update
Replies: 34
Views: 12610

Re: Update

Welcome to the world! I am so sorry you had to enter the world so early. I delivered my son at 25 weeks 2 days. He lived 6 days, but taught me so much. Some advice from what I have learned. If you do not live near the hospital, look into possible Ronald McDonald houses. If you are pumping, ask to do...
by jjones1333
Wed Jan 06, 639554 2:28 pm
Forum: Trying Again after Preeclampsia
Topic: Trying for our 3rd?
Replies: 3
Views: 1527

Trying for our 3rd?

With my first pregnancy I had severe pree with elevated liver enzymes. I delivered at 25 weeks 2 days. With my second I didn't have pree and delivered via repeat c/s at 37 weeks weeks 4 days. Although, i did have low amniotic fluid towards the date leves at 7cm down from my average 11-12. Doctors du...
by jjones1333
Sat Feb 16, 639269 11:07 pm
Forum: Ask the Experienced
Topic: Lovenox Question
Replies: 1
Views: 574

Lovenox Question

My sister is currently pregnant with her first. She does not have and autoimmune disorders, but had a blood clot 2 1/2 years ago. They thought she had protein c & s defieicney, but turned out to be a false positive. The doctors have her on lovenox right now because she has low protein s, but not a d...
by jjones1333
Sun Sep 29, 639252 9:30 pm
Forum: Misc
Topic: now my sister is going through it :(
Replies: 6
Views: 3743

Re: now my sister is going through it :(

I am so glad your sister and baby are doing good. It's good that they kept her in the hospital.
by jjones1333
Sat Jan 05, 639247 8:03 am
Forum: HELLP Syndrome Survivors and Underlying Disorders
Topic: Long-term health issues after PE?
Replies: 8
Views: 3697

Re: Long-term health issues after PE?

I had the same feeling! The first year after I had pre-e I went to the ER 2x for chest pains and shortness of breath. I was seen by a cardiologist and a pulmonologist. At the ER I was diagnosed with pleurisy, but my other doctors didn't find anything. It's been 3 years and am still looking for a rea...
by jjones1333
Fri Jul 24, 639243 6:35 am
Forum: California
Topic: Survivors in North OC/LA/Inland Empire?
Replies: 3
Views: 8303

Re: Survivors in North OC/LA/Inland Empire?

Hi Kimberlee, I know this is a little late, but I live in Murrieta/Temecula area. I would love to get together. I was actually thinking of starting an Inland Empire group on meetup.com, but it costs money boo :( My twin sister actually lives in Huntington Beach. She hasn't suffered herself, but she ...
by jjones1333
Mon Apr 10, 639234 10:42 pm
Forum: Grief and Loss
Topic: It has been a year
Replies: 10
Views: 3664

Re: It has been a year

Sam, I am so sorry for your loss. The first year was the hardest for me. I did exactly what you did for his birthday. I threw a little party with friends and family. It made the day easier knowing how many people loved Anthony. I;m sure Henrey was looking down at you and trying to blow out the candl...
by jjones1333
Sat Jan 08, 638952 3:36 am
Forum: Raising Awareness and Fundraising--Idea Exchange
Topic: Anthony's Memorial Softball Tournament - Calif
Replies: 1
Views: 6069

Re: Anthony's Memorial Softball Tournament - Calif

The correct loaction is actually:

Winchester Park
32665 Haddock Street
Winchester, CA 92596

The date of event is Sunday March 13th, 2011
by jjones1333
Fri Aug 06, 638923 12:04 am
Forum: Misc
Topic: Law & Order SVU episode
Replies: 4
Views: 2230

Re : Law & Order SVU episode

I saw it part of it. I thought it was interesting. What I didn't like about it was how the doctor said that the baby wasn't worth taking care of. Having lost my son after being born at 25 weeks, this hit me pretty hard. I actually got a little mad.

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